Give Hope. Spread Love.

Amy Eissler
Beaverton, OR

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About my Fundraiser
This is My Story
     My dad, Mark Eissler, passed away in November 2009 from Frontotemporal Degeneration (FTD). He spent his last months in a lock-down memory care facility.  He could no longer speak, walk, or feed himself.  He was only 60 years old when he passed away.   He carried a rare, genetic form of FTD.  My dad's mother and his two uncles, his two brothers, and sister all inherited the gene mutation and died from FTD.   Each of their children have a 50% chance of inheritating FTD too.

In September 2012, two years after being tested at UCSF's Memory & Aging Center, I finally found the courage to get my test results.  That day my life changed. I was told I do not have the gene mutation.  

Why did I get so lucky? Why was I blessed? 
I can think of only one answer. 
I can raise awareness and help other families affected by FTD. 
Will you help me?

In memory of my father;
In honor of my family members who inherited the gene mutation;
and for my family members who have not yet received their genetic results;
For their children; and their childrens' children;  
For all of those who have or will be affected by FTD;
Please help give them hope. 

Contributions help fund The Association for Frontotemporal Degeneration (AFTD) with research, education, support and advocacy.  Your donations will make a difference because they make progress possible.

What is FTD?
  • FTD is a disease that gradually destroys the frontal and temporal lobes of the brain.  It causes a group of brain disorders that are characterized by changes in behavior and personality, language and/or motor skills and an inevitable deterioration in a person’s ability to function. 
  • It gradually impairs the ability to behave appropriate, to empathize with others, to plan or reason, to communicate with language, and to make decisions. 
  • As it worsens over time it interferes with the ability to live independently and eventually requires 24-hour care.
  • FTD is often diagnosed in the mid- to late-40s, when a person is actively parenting and nearing the height of his or her career.
  • Today there is no cure or treatment for FTD. 
  • Approximately 20% of people with FTD have a strong family history of dementia.  People with this family history pattern have FTD because of a single genetic cause.