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Alice's Angels - Food for Thought 2014

Zoy Kocian
Round Rock, TX

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About my Fundraiser
My dad is my mom's biggest angel.  Don't get me wrong, it hasn't been easy for him, but with help from a wonderful caregiver and support from his kids and family, he has pushed through.  My mom and my dad's roles have completely reversed and my dad has become a great caregiver.

My mom was diagnosed with Frontotemporal Degeneration (FTD) at the beginning of 2012 although I think she was showing symptoms all the way back to 2007.  This disease has robbed my mom of everything that made her a vital contributor to society...her personality, her zest for life, her positive attitude, her love for humanity, her creativity, her love for her grandkids, her joy in seeing her girls succeed in life, her desire to see their business thrive, etc., etc.

As the past two plus years have disappeared, so has my mom.  She told us over and over early in the diagnosis that she felt like she was disappearing.  We told her that she wasn't disappearing just to comfort her, but she has disappeared.  Occasionally we would see glimpes of her old self but even that has passed.

My family hates this disease and we will do everything we can to help support finding a cure.  I hope you help as well either through learning more about brain diseases and spreading the word or through contributions to organization working toward finding a cure for FTD.

What is FTD?

Frontotemporal degeneration (FTD) is a disease process that affects the frontal and temporal lobes of the brain.  It causes a group of brain disorders that are characterized by changes in behavior and personality, language and/or motor skills and an inevitable deterioration in a person’s ability to function.  FTD is often diagnosed in the mid- to late-50s, when a person is actively parenting and nearing the height of his or her career.