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Alice's Angels

Zoy Kocian
Round Rock, TX

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About my Fundraiser
Alice...a wife, mother of four and Grammy to her grandchildren...we are her angels along with so many others who love and care for her.  

Alice was diagnosed with Frontotemporal Degeneration in 2012.  Because of wonderful support from family, friends, doctors and our Austin, Texas FTD support group, we've come to terms with the fact that "Alice" will never be the same again.  Alice has the behavioral variant of FTD.  Her behavioral changes were the first indication that something was going terribly wrong with her brain.  The diagnosis meant there was a reason for the behavioral changes, but unfortunately there is no cure for FTD.  Through donations and awareness campaigns we are inching toward a cure and more awareness.  Please take a look at the information below and at the www.aftd.org website for more information and consider making a donation.  Every dollar helps.  

What is FTD?

Frontotemporal degeneration (FTD) is a disease process that affects the frontal and temporal lobes of the brain.  It causes a group of brain disorders that are characterized by changes in behavior and personality, language and/or motor skills and an inevitable deterioration in a person’s ability to function.  FTD is often diagnosed in the mid- to late-50s, when a person is actively parenting and nearing the height of his or her career.
 
What is AFTD?
The Association for Frontotemporal Degeneration (AFTD) is a not-for-profit organization founded in 2002 to advocate for more funding into the causes and treatments of frontotemporal degeneration, as well as provide caregivers and patients with a dependable source of accurate, reliable information and support.
 
AFTD’s Mission is to:
  • Promote and fund research into finding the cause, therapies and cures for frontotemporal degeneration
  • Provide information, education and support to persons diagnosed with an FTD disorder, and for their families and caregivers
  • Educate physicians and allied health professionals about frontotemporal degeneration and how to improve patient care
  • Bring about greater public awareness of the nature and prevalence of frontotemporal degeneration and the needs of those who are coping with it
  • Advocate with public officials and promote public and private programs that provide appropriate, affordable and high-quality, long-term health care and social services
  • Facilitate the international exchange of ideas.
Your support of our mission is vital to the success of achieving a cure for FTD!  Thank you.