Gene   don for ftd

2014 Food for Thought at Cowboy Up, Dover DE

Eugenia Thornton
Frederica, DE

Small logo high res jpg
About my Fundraiser
My husband's brain is shrinking.
 
Doctor Paul D. Rosenberg of the Johns Hopkins Memory Center told me today, August 27, 2013, that it is a “minor miracle” that I still have Don at home.
 
Don has Frontotemporal Degeneration (FTD), a disease that affects the frontal and temporal lobes of the brain. 
 
It causes a group of brain disorders that are characterized by changes in behavior and personality, language and/or motor skills.
 
He is in the advanced stages of FTD; but until August of last year, I had never heard of this fatal disease.
 
Don will suffer inevitable deterioration in his ability to function at all--that includes things like swallowing.  
 
I wish I had known that he had a disease when his personality and abilities began to change. 
 
I thought he just didn't love me.  Later, as he lost his ability to process language, I realized that was not the case.  He loves me dearly, and I love him. 
 
There is nothing I can do for Don, according to Dr. Rosenberg.  We are trying some drugs to help him with day to day functions.
 
I want to help spread the word about this disease to save other caregivers what I went through before I knew what it was. 
 
I want to raise money for research, for caregiver conferences, for whatever it takes to find out more about this disease and to help those who suffer and those who love and care for those with FTD. 
 
I hope you will help by donating and/or coming out to Cowboy Up on Oct 14, 2013. 
 
It will be fun to country line dance and share a meal. Let’s not dwell on what will happen to Don tomorrow. 
 
As Ferris Bueller said, “"Life comes at you pretty fast. If you don't stop and look around once in a while, you could miss it."-
  
Let’s do some good and make some great memories now, while we can!
 
To find out more about the fundraiser on Oct 14, 2013 please visit our Facebook page entitled 2014 Food for Thought.  Monies donated before Oct 12 will count towards the AFTD Food for Thought grassroots fundraiser.    
 
Please click https://www.facebook.com/events/369907106473105/  to be taken to that page.


     
COMMENTS