The Association for Frontotemporal Degeneration

The Association for Frontotemporal Degeneration is the place to turn for accurate information, compassion and hope when lives are touched by frontotemporal degeneration. FTD, also called frontotemporal dementia or frontotemporal lobar degeneration (FTLD), is a disease process that causes a group of brain disorders characterized by changes in behavior and personality, language and/or motor skills, and a deterioration in a person’s ability to function.

Our Mission:

  • Promote and fund research into finding the cause, therapies and cures for frontotemporal degeneration
  • Provide information, education and support to persons diagnosed with an FTD disorder, and for their families and caregivers
  • Educate physicians and allied health professionals about frontotemporal degeneration and how to improve patient care
  • Bring about greater public awareness of the nature and prevalence of frontotemporal degeneration and the needs of those who are coping with it
  • Advocate with public officials and promote public and private programs that provide appropriate, affordable and high-quality, long-term health care and social services
  • Facilitate the international exchange of ideas.

Our Vision:

We envision a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented.


Campaign for Max Portnoy's Catch-a-Thon

$20,000.00 raised towards $18,000.00 goal!
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AFTD's With Love 2015

$48,815.00 raised towards $50,000.00 goal!
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Grassroots Fundraisers  View All

Hiking for FTD Corticobas...
(James )

My Father suffers from Corticobasal Syndrome.

$1,030.00 raised towards $1,500.00 goal!
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Deanna dec 2012

Strong Body, Strong Mind:...
(Deanna Angello)

Help me in my Strong Body, Strong Mind campaign which is focused on raising awareness and funds for the Association for Frontotemporal De...

$41,320.00 raised towards $50,000.00 goal!
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$1,610.00 raised towards $1,500.00 goal!
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$1,800.00 raised towards $2,000.00 goal!
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