About my Fundraiser
My Father suffers from FTD Corticobasal Syndrome.
It destroys brain cells that control your motor skills and you ability to speak and do simple things like tie your shoes or button your shirt, things we do without even thinking about it. Dad has slowed down, some days I think he is giving up. His speech is almost to the point were we cant understand much of what he is saying.
May 15, 2013
"Very difficult day for for mom . Took Pa to the neurologist. She was quite shocked at Pa's rapid decline. His legs and arms are very rigid and the aphasia is fully progressed. He still has a chronic cough and his emotions are unstable. He will steadily decline. It will be a long road....."
Thoughts from my Sister Jean,
"Charles Estel Tabor Sr. I remember growing up in a house rebuilt by the hands of a very strong man. My Dad was the bread winner, the strong horse of the family. What ever little project Mom put him on he could do. Building houses and remodeling kept him busy even while working full time. He made bird houses, shelves and beautiful hardwood floors. Not much of a conversationalist, but he liked a good joke and could draw the best cowboys with cigarettes hanging from their lips and a paper airplane that always flew.
Now Dad stares blankly at me and mumbles a few words now and then. It is difficult to understand him because the CBS has taken away his ability to speak clearly. This is called aphasia a typical sign of CBS. He can no longer make a bird house or even hold a pencil due to the tremors in his hands, again a CBS related symptom. He stumbles around and it is a challenge for him to get out of his easy chair these days. Dad is 73 and has lived a long hard life. I really did not want his later years to be this way. But with faith in God and your generous donations this disease will no longer affect the ones we love. Help us Find a cure!"
Thoughts from my brother Tom.
"Last winter, I remember sitting in the kitchen watching him try to light a fire with matches. The motor control was already starting to go, and he was fumbling around trying to get it lit. It was painful to watch, and now he is having trouble holding a spoon, or doing even the most basic tasks. You can see the impact that the disease is having, and it breaks your heart. If you knew my dad when he was younger, it would be all the more depressing. Picture a man who could throw a 100 pound bag of feed over one shoulder and a young boy (me) over the other and walk uphill in the snow in the dark to the house. Picture a man who would mow his yard, with a push mower, on the hottest day of the year, come in the house, drink a huge glass of cold coffee and then go up and work in the garden until dark. Picture a man with a broken leg, who decided to put hardwood floors in the house and maintain a full garden while in a full leg cast.
Nothing stopped him, and after a while you got the feeling that nothing ever would. Once he got an idea into his head, it got done. He would obsess over it, worry over it, and keep working on it until he figured it out.
That man is gone now, he is nothing but a shadow of his former self. I know I am not the only son who has a father with FTD. I'm just another person in the sad group of people who have been touched in some way by this horrible disease."
I want to raise money for research. My goal is, I don't have a set goal I want to raise as much as I can. I am hiking Pennsylvania on the Appalachian Trail a few miles at a time to raise money for CBS. I have been able to raise over $1000.00 thanks to your donations. I know that's not much but it is a start.
I hope you can help me reach my goals.
This will be a on going effort to raise money and awareness for FTD.
Miles of the Appalachian Trail Hiked
Miles Hiked in 2012 175.3
Miles hiked. In 2013 300