The Association for Frontotemporal Degeneration

The Association for Frontotemporal Degeneration is the place to turn for accurate information, compassion and hope when lives are touched by frontotemporal degeneration. FTD, also called frontotemporal dementia or frontotemporal lobar degeneration (FTLD), is a disease process that causes a group of brain disorders characterized by changes in behavior and personality, language and/or motor skills, and a deterioration in a person’s ability to function.


Our Mission:

  • Promote and fund research into finding the cause, therapies and cures for frontotemporal degeneration
  • Provide information, education and support to persons diagnosed with an FTD disorder, and for their families and caregivers
  • Educate physicians and allied health professionals about frontotemporal degeneration and how to improve patient care
  • Bring about greater public awareness of the nature and prevalence of frontotemporal degeneration and the needs of those who are coping with it
  • Advocate with public officials and promote public and private programs that provide appropriate, affordable and high-quality, long-term health care and social services
  • Facilitate the international exchange of ideas.


Our Vision:

We envision a world where frontotemporal degeneration is understood, effectively diagnosed, treated, cured and ultimately prevented.

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Passport To A Cure
(Barbara Hamilton-Sustad)

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Shopping For A Cause Craf...
(Kathleen Fisher)

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